Hospice care bulletin: August 2019

June/July 2019

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Staff publications

Craig Gannon, Medical Director

Palliative opioid use, palliative sedation and euthanasia: reaffirming the distinction

Journal of Medical Ethics [ONLINE] 20-Jun-19. DOI: http://dx.doi.org/10.1136/medethics-2018-105256

Guidelines and standards

Learning disability: care and support of people growing older

NICE Quality standard [QS187] Published date: July 2019

Dementia

NICE Quality standard [QS184] Published date: June 2019

Multiple sclerosis in adults: management

Clinical guideline [CG186] Published date: October 2014 Last updated: July 2019

Chronic obstructive pulmonary disease in over 16s: diagnosis and management

NICE guideline [NG115] Published date: December 2018 Last updated: July 2019

End of life care for infants, children and young people with life-limiting conditions: planning and management

NICE guideline [NG61] Published date: December 2016 Last updated: July 2019

Motor neurone disease: assessment and management

NICE guideline [NG42] Published date: February 2016 Last updated: July 2019

Cochrane systematic reviews

No new reviews this month.

The Cochrane Pain, Palliative and Supportive Care Review Group (PaPaS) pages and the palliative care evidence database, can be found here: http://papas.cochrane.org/

Other systematic reviews and research studies

Emergency departments

[Healthcare professionals' perceptions and confrontation at patients' end-of-life in emergency departments: A qualitative systematic review].

Vázquez-García D, De-la-Rica-Escuín M, Germán-Bes C, Caballero-Navarro AL.

Rev Esp Salud Publica. 2019 Aug 1;93. pii: e201908051. Review. Spanish.

End-of-Life Care Challenges from Staff Viewpoints in Emergency Departments: Systematic Review.

Alqahtani AJ, Mitchell G.

Healthcare (Basel). 2019 Jun 29;7(3). pii: E83. doi: 10.3390/healthcare7030083. Review.

Intensive care

Palliative care interventions in intensive care unit patients - a systematic review protocol.

Metaxa V, Anagnostou D, Vlachos S, Arulkumaran N, van Dusseldorp I, Bensemmane S, Aslakson R, Davidson JE, Gerritsen R, Hartog C, Curtis R.

Syst Rev. 2019 Jun 22;8(1):148. doi: 10.1186/s13643-019-1064-y.

Long term care settings

End-of-life nursing care practice in long-term care settings for older adults: A qualitative systematic review.

Nasu K, Konno R, Fukahori H.

Int J Nurs Pract. 2019 Jul 30:e12771. doi: 10.1111/ijn.12771. [Epub ahead of print]

Correction: Experiences of older people dying in nursing homes: a narrative systematic review of qualitative studies.

[No authors listed]

BMJ Open. 2018 Jun 28;8(6). pii: bmjopen-2017-021285corr1. doi: 10.1136/bmjopen-2017-021285corr1. eCollection 2018.

Mechanisms by which end-of-life communication influences palliative-oriented care in nursing homes: A scoping review.

Gonella S, Campagna S, Basso I, De Marinis MG, Di Giulio P.

Patient Educ Couns. 2019 Jun 27. pii: S0738-3991(19)30251-4. doi: 10.1016/j.pec.2019.06.018. [Epub ahead of print] Review.

Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review.

Shiells K, Pivodic L, Holmerová I, Van den Block L.

Aging Ment Health. 2019 Jun 4:1-16. doi: 10.1080/13607863.2019.1625303. [Epub ahead of print]

Experiences and involvement of family members in transfer decisions from nursing home to hospital: a systematic review of qualitative research.

Pulst A, Fassmer AM, Schmiemann G.

BMC Geriatr. 2019 Jun 4;19(1):155. doi: 10.1186/s12877-019-1170-7.

Good end-of-life care in nursing home according to the family carers' perspective: A systematic review of qualitative findings.

Gonella S, Basso I, De Marinis MG, Campagna S, Di Giulio P.

Palliat Med. 2019 Jun;33(6):589-606. doi: 10.1177/0269216319840275. Epub 2019 Apr 10.

Specialist palliative care

Staffing a Specialist Palliative Care Service, a Team-Based Approach: Expert Consensus White Paper.

Henderson JD, Boyle A, Herx L, Alexiadis A, Barwich D, Connidis S, Lysecki D, Sinnarajah A.

J Palliat Med. 2019 Jul 26. doi: 10.1089/jpm.2019.0314. [Epub ahead of print]

Systematic review of the hospice performance literature.

He M, OʼConnor SJ, Qu H, Menachemi N, Tucker R, Shewchuk RM.

Health Care Manage Rev. 2019 Jun 20. doi: 10.1097/HMR.0000000000000258. [Epub ahead of print]

Symptom, disease and care management

Aromatherapy, massage and reflexology: A systematic review and thematic synthesis of the perspectives from people with palliative care needs

Megan Armstrong, Kate Flemming, Nuriye Kupeli, Patrick Stone, Susie Wilkinson, Bridget Candy

First Published May 6, 2019; pp. 757–769

Pressure ulcers in patients receiving palliative care: A systematic review

Amy Ferris, Annie Price, Keith Harding

First Published April 24, 2019; pp. 770–782

Implementing advance care planning with community-dwelling frail elders requires a system-wide approach: An integrative review applying a behaviour change model

Sarah Combes, Caroline Jane Nicholson, Karen Gillett, Christine Norton

First Published May 6, 2019; pp. 743–756

Palliative care for people with dementia living at home: A systematic review of interventions

Rose Miranda, Frances Bunn, Jennifer Lynch, Lieve Van den Block, Claire Goodman

First Published May 6, 2019; pp. 726–742

Prediction of Risk of Death for Patients Starting Dialysis: A Systematic Review and Meta-Analysis.

Anderson RT, Cleek H, Pajouhi AS, Bellolio MF, Mayukha A, Hart A, Hickson LJ, Feely MA, Wilson ME, Giddings Connolly RM, Erwin PJ, Majzoub AM, Tangri N, Thorsteinsdottir B.

Clin J Am Soc Nephrol. 2019 Jul 30. pii: CJN.00050119. doi: 10.2215/CJN.00050119. [Epub ahead of print]

Non-invasive ventilation in palliative care. A narrative review.

Diaz de Teran T, Barbagelata E, Cilloniz C, Nicolini A, Perazzo T, Perren A, Ocak Serin S, Scharffenberg M, Fiorentino G, Zaccagnini M, El-Khatib MI, Pappadakos P, Karim HM, Solidoro P, Esquinas A.

Minerva Med. 2019 Jul 30. doi: 10.23736/S0026-4806.19.06273-6. [Epub ahead of print]

Management of Chronic Respiratory Failure in Interstitial Lung Diseases: Overview and Clinical Insights.

Faverio P, De Giacomi F, Bonaiti G, Stainer A, Sardella L, Pellegrino G, Sferrazza Papa GF, Bini F, Bodini BD, Carone M, Annoni S, Messinesi G, Pesci A.

Int J Med Sci. 2019 Jun 10;16(7):967-980. doi: 10.7150/ijms.32752. eCollection 2019. Review.

Palliative surgical bypass is superior to palliative endoscopic stenting in patients with malignant gastric outlet obstruction: systematic review and meta-analysis.

Mintziras I, Miligkos M, Wächter S, Manoharan J, Bartsch DK.

Surg Endosc. 2019 Jul 22. doi: 10.1007/s00464-019-06955-z. [Epub ahead of print]

Nurse-led integration of palliative care for Chronic Obstructive Pulmonary Disease: An integrative literature review.

Ora L, Mannix J, Morgan L, Wilkes L.

J Clin Nurs. 2019 Jul 20. doi: 10.1111/jocn.15001. [Epub ahead of print]

The effect of exercise on quality of life, fatigue, physical function and safety in advanced solid tumor cancers: a meta-analysis of randomized control trials.

Nadler MB, Desnoyers A, Langelier DM, Amir E.

J Pain Symptom Manage. 2019 Jul 15. pii: S0885-3924(19)30378-1. doi: 10.1016/j.jpainsymman.2019.07.005. [Epub ahead of print] Review.

Multi-disciplinary palliative care is effective in people with symptomatic heart failure: A systematic review and narrative synthesis.

Datla S, Verberkt CA, Hoye A, Janssen DJA, Johnson MJ.

Palliat Med. 2019 Jul 15:269216319859148. doi: 10.1177/0269216319859148. [Epub ahead of print]

The efficacy of placebo for the treatment of cancer-related fatigue: a systematic review and meta-analysis.

Junior PNA, Barreto CMN, de Iracema Gomes Cubero D, Del Giglio A.

Support Care Cancer. 2019 Jul 13. doi: 10.1007/s00520-019-04977-w. [Epub ahead of print]

Do patients, families, and healthcare teams benefit from the integration of palliative care in burn intensive care units? Results from a systematic review with narrative synthesis.

Ribeiro AF, Martins Pereira S, Gomes B, Nunes R.

Palliat Med. 2019 Jul 12:269216319862160. doi: 10.1177/0269216319862160. [Epub ahead of print]

Electrochemotherapy for the palliative management of cutaneous metastases: A systematic review and meta-analysis.

Morley J, Grocott P, Purssell E, Murrells T.

Eur J Surg Oncol. 2019 Jul 2. pii: S0748-7983(19)30540-2. doi: 10.1016/j.ejso.2019.07.003. [Epub ahead of print] Review.

Quality of life during palliative systemic therapy for oesophagogastric cancer: systematic review and meta-analysis.

van Kleef JJ, Ter Veer E, van den Boorn HG, Schokker S, Ngai LL, Prins MJ, Mohammad NH, van de Poll-Franse LV, Zwinderman AH, van Oijen MGH, Sprangers MAG, van Laarhoven HWM.

J Natl Cancer Inst. 2019 Jun 28. pii: djz133. doi: 10.1093/jnci/djz133. [Epub ahead of print]

Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review.

Hosie A, Siddiqi N, Featherstone I, Johnson M, Lawlor PG, Bush SH, Amgarth-Duff I, Edwards L, Cheah SL, Phillips J, Agar M.

Palliat Med. 2019 Jun 28:269216319853487. doi: 10.1177/0269216319853487. [Epub ahead of print]

Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.

Chambers E, Gardiner C, Thompson J, Seymour J.

Palliat Med. 2019 Jun 28:269216319858247. doi: 10.1177/0269216319858247. [Epub ahead of print]

Effect of Life Review on Quality of Life in Terminal Patients: A Systematic Review and Meta-Analysis.

Huang MH, Wang RH, Wang HH.

J Nurs Res. 2019 Jul 9. doi: 10.1097/JNR.0000000000000335. [Epub ahead of print]

Effects of dignity therapy on dignity, psychological well-being, and quality of life among palliative care cancer patients: A systematic review and meta-analysis.

Xiao J, Chow KM, Liu Y, Chan CWH.

Psychooncology. 2019 Jun 27. doi: 10.1002/pon.5162. [Epub ahead of print] Review.

Holistic services for people with advanced disease and chronic or refractory breathlessness: a mixed-methods evidence synthesis.

Maddocks M, Brighton LJ, Farquhar M, Booth S, Miller S, Klass L, Tunnard I, Yi D, Gao W, Bajwah S, Man WDC, Higginson IJ.

Southampton (UK): NIHR Journals Library; 2019 Jun.

Reducing inappropriate prescribing for older adults with advanced frailty: A review based on a survey of practice in four countries.

O'Caoimh R, Cornally N, McGlade C, Gao Y, O'Herlihy E, Svendrovski A, Clarnette R, Lavan AH, Gallagher P, William Molloy D.

Maturitas. 2019 Aug;126:1-10. doi: 10.1016/j.maturitas.2019.04.212. Epub 2019 Apr 20. Review.

Multiple sclerosis and stroke: a systematic review and meta-analysis.

Hong Y, Tang HR, Ma M, Chen N, Xie X, He L.

BMC Neurol. 2019 Jun 24;19(1):139. doi: 10.1186/s12883-019-1366-7.

Narrative Interventions in the Palliative Care Setting: A Scoping Review.

Laskow T, Small L, Wu DS.

J Pain Symptom Manage. 2019 Jun 16. pii: S0885-3924(19)30314-8. doi: 10.1016/j.jpainsymman.2019.06.009. [Epub ahead of print] Review.

Impact of health service interventions on acute hospital use in community-dwelling persons with dementia: A systematic literature review and meta-analysis.

Godard-Sebillotte C, Le Berre M, Schuster T, Trottier M, Vedel I.

PLoS One. 2019 Jun 21;14(6):e0218426. doi: 10.1371/journal.pone.0218426. eCollection 2019.

[Drug management of cancer-related peripheral neuropathic pain: A systematic review of the literature].

Medioni J, Pickering G, Delorme C, Lansaman T, Lanteri-Minet M, Legras A, Navez M, Prudhomme M, Serrie A, Viel É, Perrot S.

Bull Cancer. 2019 Jun 12. pii: S0007-4551(19)30220-6. doi: 10.1016/j.bulcan.2019.04.009. [Epub ahead of print] Review. French.

Palliative care transitions from acute care to community-based care - a systematic review.

Saunders S, Killackey T, Kurahashi A, Walsh C, Wentlandt K, Lovrics E, Scott M, Mahtani R, Bernstein M, Howard M, Tanuseputro P, Goldman R, Zimmermann C, Aslakson RA, Isenberg SR.

J Pain Symptom Manage. 2019 Jun 12. pii: S0885-3924(19)30310-0. doi: 10.1016/j.jpainsymman.2019.06.005. [Epub ahead of print] Review.

Do published patient decision aids for end-of-life care address patients' decision-making needs? A systematic review and critical appraisal.

Phillips G, Lifford K, Edwards A, Poolman M, Joseph-Williams N.

Palliat Med. 2019 Jun 14:269216319854186. doi: 10.1177/0269216319854186. [Epub ahead of print]

Consumer and carer leadership in palliative care academia and practice: A systematic review with narrative synthesis.

Scholz B, Bevan A, Georgousopoulou E, Collier A, Mitchell I.

Palliat Med. 2019 Jun 14:269216319854012. doi: 10.1177/0269216319854012. [Epub ahead of print]

The incidence and prevalence of delirium across palliative care settings: A systematic review.

Watt CL, Momoli F, Ansari MT, Sikora L, Bush SH, Hosie A, Kabir M, Rosenberg E, Kanji S, Lawlor PG.

Palliat Med. 2019 Jun 11:269216319854944. doi: 10.1177/0269216319854944. [Epub ahead of print]

[Cannabis and cannabinoids in palliative care].

Rasche T, Emmert D, Radbruch L, Conrad R, Mücke M.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2019 Jul;62(7):830-835. doi: 10.1007/s00103-019-02967-1. Review. German.

Pressure ulcers in patients receiving palliative care: A systematic review.

Ferris A, Price A, Harding K.

Palliat Med. 2019 Jul;33(7):770-782. doi: 10.1177/0269216319846023. Epub 2019 Apr 24.

Drug use beyond the licence in palliative care: A systematic review and narrative synthesis.

Hagemann V, Bausewein C, Remi C.

Palliat Med. 2019 Jun;33(6):650-662. doi: 10.1177/0269216319840602. Epub 2019 Apr 24.

Strategies for Pain Assessment in Adult Patients With Delirium: A Scoping Review.

Fischer T, Hosie A, Luckett T, Agar M, Phillips J.

J Pain Symptom Manage. 2019 Jun 10. pii: S0885-3924(19)30302-1. doi: 10.1016/j.jpainsymman.2019.05.020. [Epub ahead of print] Review.

Fan Therapy for the Treatment of Dyspnea in Adults: a Systematic Review.

Qian Y, Wu Y, Rozman de Moraes A, Yi X, Geng Y, Dibaj S, Liu D, Naberhuis J, Bruera E.

J Pain Symptom Manage. 2019 Apr 17. pii: S0885-3924(19)30179-4. doi: 10.1016/j.jpainsymman.2019.04.011. [Epub ahead of print]

Symptom Clusters in People Living With HIV: A Systematic Review.

Zhu Z, Zhao R, Hu Y.

J Pain Symptom Manage. 2019 Jul;58(1):115-133. doi: 10.1016/j.jpainsymman.2019.03.018. Epub 2019 Apr 2. Review.

Patient-Reported Outcomes for Cancer Patients Receiving Checkpoint Inhibitors: Opportunities for Palliative Care-A Systematic Review.

Hall ET, Singhal S, Dickerson J, Gabster B, Wong HN, Aslakson RA, Schapira L; AAHPM Research Committee Writing Group.

J Pain Symptom Manage. 2019 Jul;58(1):137-156.e1. doi: 10.1016/j.jpainsymman.2019.03.015. Epub 2019 Mar 21.

Clinically Significant Drug-Drug Interactions Involving Medications Used for Symptom Control in Patients With Advanced Malignant Disease: A Systematic Review.

Kotlinska-Lemieszek A, Klepstad P, Haugen DF.

J Pain Symptom Manage. 2019 May;57(5):989-998.e1. doi: 10.1016/j.jpainsymman.2019.02.006. Epub 2019 Feb 16. Review.

The Association Between Benzodiazepines and Survival in Patients With Cancer: A Systematic Review.

O'Donnell SB, Nicholson MK, Boland JW.

J Pain Symptom Manage. 2019 May;57(5):999-1008.e11. doi: 10.1016/j.jpainsymman.2019.01.010. Epub 2019 Jan 30. Review.

Differences between experienced and recalled breathlessness a review

Sandberg, Jacob; Ekström, Magnus

Current Opinion in Supportive and Palliative Care. 13(3):161-166, September 2019.

Advance care planning

Advance Directive Preferences Among Terminally Ill Older Patients and Its Facilitators and Barriers in China: A Scoping Review.

Liao J, Wu B, Ni P, Mao J.

J Am Med Dir Assoc. 2019 Jul 4. pii: S1525-8610(19)30431-1. doi: 10.1016/j.jamda.2019.05.013. [Epub ahead of print] Review.

Perspectives and Experiences of Persons With Dementia With Advance Care Planning: An Integrative Literature Review.

Geshell L, Kwak J, Radhakrishnan K.

J Geriatr Psychiatry Neurol. 2019 Jun 12:891988719853040. doi: 10.1177/0891988719853040. [Epub ahead of print]

Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis.

Kelly AJ, Luckett T, Clayton JM, Gabb L, Kochovska S, Agar M.

Palliat Support Care. 2019 Jun 10:1-13. doi: 10.1017/S1478951519000257. [Epub ahead of print]

A systematic review of the effects of advance care planning facilitators training programs.

Chan CWH, Ng NHY, Chan HYL, Wong MMH, Chow KM.

BMC Health Serv Res. 2019 Jun 7;19(1):362. doi: 10.1186/s12913-019-4192-0.

Clinician barriers and facilitators to heart failure advance care plans: a systematic literature review and qualitative evidence synthesis.

Schichtel M, Wee B, MacArtney JI, Collins S.

BMJ Support Palliat Care. 2019 Jul 22. pii: bmjspcare-2018-001747. doi: 10.1136/bmjspcare-2018-001747. [Epub ahead of print] Review.

How Should End-of-Life Advance Care Planning Discussions Be Implemented According to Patients and Informal Carers? A Qualitative Review of Reviews.

Hall A, Rowland C, Grande G.

J Pain Symptom Manage. 2019 Apr 18. pii: S0885-3924(19)30181-2. doi: 10.1016/j.jpainsymman.2019.04.013. [Epub ahead of print] Review.

Volunteer Involvement in Advance Care Planning: A Scoping Review.

Sellars M, Simpson J, Kelly H, Chung O, Nolte L, Tran J, Detering K.

J Pain Symptom Manage. 2019 Jun;57(6):1166-1175.e1. doi: 10.1016/j.jpainsymman.2019.02.031. Epub 2019 Mar 8. Review.

Bereavement

A systematic review and quality appraisal of bereavement care practice guidelines.

Kent K, Jessup B, Marsh P, Barnett T, Ball M.

J Eval Clin Pract. 2019 Jul 9. doi: 10.1111/jep.13225. [Epub ahead of print] Review.

The relationship between substance misuse and complicated grief: A systematic review.

Parisi A, Sharma A, Howard MO, Blank Wilson A.

J Subst Abuse Treat. 2019 Aug;103:43-57. doi: 10.1016/j.jsat.2019.05.012. Epub 2019 May 23.

Carers

The direct and indirect financial costs of informal cancer care: A scoping review.

Coumoundouros C, Ould Brahim L, Lambert SD, McCusker J.

Health Soc Care Community. 2019 Jul 10. doi: 10.1111/hsc.12808. [Epub ahead of print] Review.

The experiences of family members witnessing the diminishing drinking of a dying relative: An adapted meta-narrative literature review.

Pettifer A, Froggatt K, Hughes S.

Palliat Med. 2019 Jul 1:269216319859728. doi: 10.1177/0269216319859728. [Epub ahead of print]

Communication

Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence.

Anderson RJ, Bloch S, Armstrong M, Stone PC, Low JT.

Palliat Med. 2019 Jun 11:269216319852007. doi: 10.1177/0269216319852007. [Epub ahead of print]

Digital

Video consultations in palliative care: A systematic integrative review.

Jess M, Timm H, Dieperink KB.

Palliat Med. 2019 Jun 12:269216319854938. doi: 10.1177/0269216319854938. [Epub ahead of print]

Telemedicine Video Visits for patients receiving palliative care: A qualitative study

Sumaiya Tasneem, MPH, Arum Kim, MD, Ashley Bagheri, MS, James Lebret, MD

First Published May 7, 2019; pp. 789–794

TeleHospice: A Community-Engaged Model for Utilizing Mobile Tablets to Enhance Rural Hospice Care

Gary C. Doolittle, MD, Eve-Lynn Nelson, PhD, FATA, Ashley O. Spaulding, MA, Adam F. Lomenick, BS, Hope M. Krebill, MSW, BSN, RN, Natasia J. Adams, MPH, MA, Sandy J. Kuhlman, BSN, Joe L. Barnes, MD

First Published February 25, 2019; pp. 795–800

Equality and diversity

Methods for overcoming barriers in palliative care for ethnic/racial minorities: a systematic review.

Mayeda DP, Ward KT.

Palliat Support Care. 2019 Jul 26:1-10. doi: 10.1017/S1478951519000403. [Epub ahead of print]

Does ethnicity matter-Cultural factors underlying older adults' end-of-life care preferences: A systematic review.

Rahemi Z, Williams CL.

Geriatr Nurs. 2019 Jul 15. pii: S0197-4572(19)30175-2. doi: 10.1016/j.gerinurse.2019.07.001. [Epub ahead of print]

Palliative care for older South Asian migrants: a systematic review.

Shabnam J, Timm H, Nielsen DS, Raunkiaer M.

Palliat Support Care. 2019 Jul 8:1-13. doi: 10.1017/S1478951519000397. [Epub ahead of print]

What socio-economic factors determine place of death for people with life-limiting illness? A systematic review and appraisal of methodological rigour.

Neergaard MA, Brunoe AH, Skorstengaard MH, Nielsen MK.

Palliat Med. 2019 Jun 12:269216319847089. doi: 10.1177/0269216319847089. [Epub ahead of print]

Cancer Pain in People with Intellectual Disabilities:Systematic Review and Survey of Health Care Professionals.

Millard SK, de Knegt NC.

J Pain Symptom Manage. 2019 Jul 18. pii: S0885-3924(19)30386-0. doi: 10.1016/j.jpainsymman.2019.07.013. [Epub ahead of print] Review.

Meeting the Needs of People Who Identify as Lesbian, Gay, Bisexual, Transgender, and Queer in Palliative Care Settings

Higgins, Agnes; Hynes, Geralyn

Journal of Hospice & Palliative Nursing. 21(4):286-290, August 2019.

Ethics

Medical assistance in dying: implications for health systems from a scoping review of the literature.

Fujioka JK, Mirza RM, Klinger CA, McDonald LP.

J Health Serv Res Policy. 2019 Jul;24(3):207-216. doi: 10.1177/1355819619834962. No abstract available.

Family members' experiences of assisted dying: A systematic literature review with thematic synthesis.

Gamondi C, Fusi-Schmidhauser T, Oriani A, Payne S, Preston N.

Palliat Med. 2019 Jun 27:269216319857630. doi: 10.1177/0269216319857630. [Epub ahead of print]

Nutrition

A systematic review examining nutrition support interventions in patients with incurable cancer.

Blackwood HA, Hall CC, Balstad TR, Solheim TS, Fallon M, Haraldsdottir E, Laird BJ.

Support Care Cancer. 2019 Jul 29. doi: 10.1007/s00520-019-04999-4. [Epub ahead of print]

The role of parenteral nutrition in patients with malignant bowel obstruction.

Bozzetti F.

Support Care Cancer. 2019 Jul 17. doi: 10.1007/s00520-019-04948-1. [Epub ahead of print] Review.

Supporting families when a close relative is dying

Challenges and support needs of parents and children when a parent is at end of life: A systematic review.

Hanna JR, McCaughan E, Semple CJ.

Palliat Med. 2019 Jun 27:269216319857622. doi: 10.1177/0269216319857622. [Epub ahead of print]

Continuing Bonds With Children and Bereaved Young People: A Narrative Review.

Clabburn O, Knighting K, Jack BA, O'Brien MR.

Omega (Westport). 2019 Jun 5:30222819853195. doi: 10.1177/0030222819853195. [Epub ahead of print]

Teaching and training

Teaching Palliative Care to Health Professional Students: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.

Donne J, Odrowaz T, Pike S, Youl B, Lo K.

Am J Hosp Palliat Care. 2019 Jul 15:1049909119859521. doi: 10.1177/1049909119859521. [Epub ahead of print]

Children and young people with life-limiting illness

Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol.

Greenfield K, Holley S, Schoth DE, Harrop E, Howard R, Bayliss J, Brook L, Jassal S, Johnson M, Wong I, Liossi C.

BMJ Open. 2019 Jul 27;9(7):e030566. doi: 10.1136/bmjopen-2019-030566.

Children's unmet palliative care needs: a scoping review of parents' perspectives.

Constantinou G, Garcia R, Cook E, Randhawa G.

BMJ Support Palliat Care. 2019 Jul 19. pii: bmjspcare-2018-001705. doi: 10.1136/bmjspcare-2018-001705. [Epub ahead of print] Review.

Influence of health interventions on quality of life in seriously ill children at the end of life: a systematic review protocol.

Piette VE, Cohen J, Deliens L, Pauwels N, van der Werff Ten Bosch J, Beernaert K.

Syst Rev. 2019 Jul 11;8(1):165. doi: 10.1186/s13643-019-1059-8.

Prevalence and Incidence of Anxiety and Depression Among Children, Adolescents, and Young Adults With Life-Limiting Conditions: A Systematic Review and Meta-analysis.

Barker MM, Beresford B, Bland M, Fraser LK.

JAMA Pediatr. 2019 Jul 8. doi: 10.1001/jamapediatrics.2019.1712. [Epub ahead of print]

Experiences of Adolescents and Young Adults Living With Advanced Cancer: An Integrative Review.

Lundquist DM, Berry DL.

Oncol Nurs Forum. 2019 Jul 1;46(4):451-458. doi: 10.1188/19.ONF.451-458.

The specification, acceptability and effectiveness of respite care and short breaks for young adults with complex healthcare needs: protocol for a mixed-methods systematic review.

Pilkington G, Knighting K, Bray L, Downing J, Jack BA, Maden M, Mateus C, Noyes J, O'Brien MR, Roe B, Tsang A, Spencer S.

BMJ Open. 2019 Jun 17;9(6):e030470. doi: 10.1136/bmjopen-2019-030470.

Respite care for children and youth with complex care needs and their families: a scoping review protocol.

Breneol S, King ST, Best S, McKibbon S, Curran JA.

JBI Database System Rev Implement Rep. 2019 Jul;17(7):1297-1304. doi: 10.11124/JBISRIR-2017-003998.

Symptom Experience of Children With Cancer Younger Than Eight Years of Age: An Integrative Review.

Cheng L, Liu F, Feng S, Wang Y, Gu Y, Kang Q.

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Reports and announcements

Bereavement: a practical guide for NHS managers

The Academy of Fabulous Stuff, the Institute for Healthcare Management and IMS-Maxims have published a guide aimed at helping everyone who comes into contact with bereaved relatives, carers and friends to understand what is required of them and the organisations they work in.

National Audit of Care at the End of Life: First round of the audit (2018/19) report: England and Wales and the Northern Ireland

A new report looking at the experience of people who die in hospitals.

2019 Marie Curie Research Conference

This year’s joint meeting between the Royal Society of Medicine and Marie Curie will focus on the inpatient unit.

Death in people aged 75 years and older in England in 2017

The National End of Life Intelligence Network has released a new report.

Instant Atlas: palliative and end of life care and metadata

The National End of Life Care Intelligence Network has updated the Instant Atlas tool and metadata guide which supports our Atlas of variation for palliative and end of life care in England.

Helpforce and Marie Curie announce volunteering project for the NHS

Helpforce is partnering with Marie Curie to bring more end of life care volunteers to support patients dying in hospital and in the community.

Integrated end of life care being offered in North East Essex

The North East Essex Health and Wellbeing Alliance End of Life Board was launched in February 2018 to take shared accountability for the quality of health and social care delivered across our community for people in the last year of life. Dr Karen Chumbley reports on its progress so far.

Results from an analysis of hospice community volunteering (Hospice UK)

This report presents the findings of a study aimed at mapping the extent of community volunteering in hospices and gathering information about the services already in place, as well as identifying any barriers to developing such services.

Thetwenty minute guide to being a hospice trustee (new Hospice UK edition for2019)

This guide will help anyone who is considering becoming a trustee of a hospice.